TIPS FOR CARERS
Losing Hair in
This can be confronting for any child, particularly a girl that always wanted to grow up and be like Rapunzel. This is where the concept of the hair fairy, the book, and the party came about!
Click the button below for more info on the hair party and the hair fairy.
Sedation with minimal trauma
Going into a sterile room full of business and people you do not recognise was never a nice experience for either of us.
Lucky, we had our brave fairy!
It is never nice having any procedure but giving them fun names was a good strategy to make it fun and special for her. What person do you know that has had a butterfly snake and octopus inside their body?
Weighing up the risks vs. rewards
All your child wants to do is ‘normal things’. Unfortunately, those ‘normal things’ could end your child back in the hospital with a fever or bug. There are times throughout our journey when I thought STUFF IT! We are doing it anyway because we both need to feel normal.
Keeping still through radiation
Going into a room without your security blanket (your parents) can be daunting for any child. This required some creative thinking and me going back in time and remembering how much fun a ‘choose your own adventure’
story can be!
All you have is time in the hospital, so I made it my mission to talk to anyone that made eye contact with me in the hospital and reflect on my day through a gratitude journal.
How I passed time in hospital for her
From Halloween to glow in dark parties, we themed most admissions to keep it fun. Dancing and music became our passions in hospital.